When Emma turned three, she received three birthday gifts:
– a new bed
– a tricycle
– an inoperable brain cancer the size of two normal eggs
Emma’s tumour is called Diffuse Midline Glioma. It is a new entry in the WHO database of brain cancers in the dreaded section of brain cancers known as DIPG.
DIPG is one of the deadliest brain cancers out there. It is very aggressive, grows fast, and adapts to most attempts to get rid of it.
Emma has now been fighting this terrible tumour for over three years, something that statistically speaking, only 5% of those who get diagnosed do.
Unfortunately, at this point, her doctor’s have tried everything in their book, and not been able to cure her or stop her tumour from growing. They have effectively given up all attempts at saving Emma’s life.
Right now, our only focus is to keep Emma as comfortable and happy as possible in her last stage of her much too short life.
Emma has had extensive chemotherapy, radiotherapy and brain surgery. It has resulted in her hair on the sides of her head is gone, burn marks and scars on the skin, and a girl that is tired, have problems with her balance, and no energy for anything, not even the things she used to love.
Emma is the strongest one of us all. She has taken all this medicine and all these treatments and rarely ever complained. Even when she was waken up in the middle of the night every 15 minutes to check her vital signs after surgery, she still mumbled “Thank you, Doctor” before she turned around and went back to sleep.
Since Emma lost her fight against her cancer on September 2nd, 2019, this page is only here for legacy reasons.