When Emma turned three, she received three birthday gifts:
– a new bed
– a tricycle
– an inoperable brain cancer the size of two normal eggs
Emma’s tumour is called Diffuse Midline Glioma. It is a new entry in the WHO database of brain cancers in the dreaded section of brain cancers known as DIPG.
(The grey area in the middle, that’s her tumor!)
DIPG is one of the deadliest brain cancers out there. It is very aggressive, grows fast, and adapts to most attempts to get rid of it.
Emma has been fighting this for a year, and have already beaten the odds by being one of the 30% that makes it past the first year. However there is some light at the end of the tunnel. There is ONE private clinic in the world that focuses on DIPG, that has managed to cure this incurable cancer version.
This hospital lies in Monterrey, Mexico, and in order to save Emma’s life, this is where we need to go. Now
If we don’t go, Emma will most likely never see her fifth birthday. That, is a future I cannot fathom living in.
These treatments are very expensive and takes time. We estimate the need to be in Monterrey for somewhere around 8 months, The price for flights is so high that we need to stay in Monterrey, since Emma will need to be near the clinic that treats her.
The estimation is at least 12 treatments over the course of these months, and more to come afterwards, but the cost for ONE treatment is about USD $15,000-$17,000, (or for you Swedes, somewhere around 130,000 SEK). For EACH treatment. Add costs for several days in the Intensive Care Unit, cost of living, air fare, the fact that we need to go to Mexico on a tourist VISA and are unable to work during this time, the costs are staggering, to say the least.
We estimate a need of USD $250,000 in order to give Emma the care she needs. Simply put, we don’t have that kind of money.
Please help us, by sending us a donation to be able to save the life of a wonderful, happy girl who really, truly is a ray of light. A girl who is so unbelievably strong in all this. A girl who has not yet had the chance to live her life.
If you cannot help us financially, you CAN help us by sharing the story. The more this spreads, the more we can raise for our daughter. Share. Like. Comment. Post.
Please help us.
As a parent, your entire world collapses when your child receives a diagnose like this. Initially, it was thought that the unusually large tumor had grown with her for a very long time, and was therefor very slow growing.
Unfortunately, the doctors were wrong.
Emma’s tumor is highly aggressive, highly adaptive, and with normal cancer treatments, her chance of survival is virtually non existent. This cancer is a Killer.
Emma has had extensive chemotherapy, radiotherapy and brain surgery. It has resulted in her hair on the sides of her head is gone, burn marks and scars on the skin, and a girl that is tired, have problems with her balance, and no energy for anything, not even the things she used to love.
Emma is the strongest one of us all. She has taken all this medicine and all these treatments and rarely ever complained. Even when she was waken up in the middle of the night every 15 minutes to check her vital signs after surgery, she still mumbled “Thank you, Doctor” before she turned around and went back to sleep.
Our only hope to give Emma a fighting chance, is to take her to a specialist clinic in Monterrey, Mexico, where they are doing an advanced treatment for just her type of cancer, and are actually giving hope to parents like me, like my fiancée.. and for Emma.
Emma is now turning four years old on June 13th. That’s one year with her cancer.
If we don’t go, she may never see her fifth birthday.
We want our daughter back. The always smiling, always happy, always filled with laughter.
Please help us. You’re our only hope.
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